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Bone Marrow Registration Drive To Save Presque Isle Baby From Leukocyte Adhesion Deficiency

| October 18, 2013

BoneMarrowDrive from WAGM-TV on Vimeo.

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A Presque Isle baby is in need of a bone marrow transplant, and you can save her life.  After her birth just a couple of months ago, doctors determined she had a rare disorder.

The Grandmother of the baby Debby Page says, “she was diagnosed with a very rare disease called leukocyte adhesion deficiency, which basically means her white blood cells can’t fight off any infection, any bacteria, any fungus..”

Brylee Gagnon (Gan-yer) needs a bone marrow transplant to survive.  She’s a two month old baby, and until a bone marrow donor is found and a transplant is done, she’s on antibiotics and anti-funguls to keep her healthy.

Page says, “we have had such an outpouring from the community for donations, for her parents to get her out to Boston and back, and it is just so heart warming to hear all the people that are planning to come and donate and help Brylee.”

A “Be The Match Registry” will be held in support by The Aroostook Medical Center.  This will help in finding a matching donor for baby Brylee.  Anyone age 18 to 44 can be the one help save her life.  It’s a rewarding experience that someone who’s done it before says, is very rewarding.

That person is Tom Richard, a bone marrow donor.  “When I got the call from the Marrow Center, that I was a possible match, and then going through the procedure and the process and the steps, to find out I was a match for the individual, it was very rewarding.”

Tom saved someone’s life.  And it started with a cheek swab.  A donor drive not only helps in finding a match for someone who needs a transplant, it also gives people the chance to have their name on a national database for a matching registry.

Twink Derosier is and LPN at the Aroostook Medical Center, she says, “it’s very necessary to have a good base that these children, infants, adults, anyone who has any type of cancer or disease that requires bone marrow transplants”

The opportunity to have baby Brylee’s life saved will rely on a match after a donor drive is held for her on October 21st at the North Street Health Center in Presque Isle.

After you fill out a questionnaire, a medical professional will to take a swab from your cheek.   It’s a very simple and painless process.  If you would like more information on the Marrow Registration Drive on Monday October 21st, you can call the TAMC Communications and Development office at 207- 768-4044.

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